While there is still quite a bit of scatter (and those are 6 month moving average data points), everything that counts, i.e. lymphocytes, platelets and hemoglobin, are slowly moving down. I only wish the platelets and hemoglobin were moving in the opposite direction of the lymphocytes , then I might be a lot happier. Just not sure how that opposite trend bodes.


When I was first diagnosed with MCL, I pretty much read just about everything I could get my hands on, I attended various conferences, and I talked to anyone who would listen. One of the most important lessons I learned, and which I've mentioned numerous times before was No one cares more about you than you. But in addition to that, I learned to fear the drug Doxorubicin , AKA Adriamycin, Doxil, Hydroxydoxorubicin, or more affectionately the Red Devil. Besides being a deadly chemical, as is the case with most chemotherapy drugs, it is one of the few chemotherapy drugs known to cause permanent heart damage. I even heard Dr. Sandra Horning , a noted Stanford lymphoma specialist, state at the first lymphoma conference I attended in LA, there was no evidence Doxorubicin provided any added benefit to chemotherapy protocols. This was music to my ears, since Doxorubicin is very common in most lymphoma treatment protocols. And even though Dr. Horning has since changed her tune [which my sk...
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If I had plotted the data from day one you would see the trend for hemoglobin and platelets are down, and continuing down. It's just been a very slow trend down. Lymphocytes originally moved up until about '08, and are now on a downward path, which would be a good thing, if the hemoglobin and platelets were rising. That just isn't the case.
The platelets are not at an alarmingly low rate, but they're not far off. I've just never been an overly optimistic person, so I always expect the worse.
Good luck with your fight - I too have mcl and are in early remission.
Just a dumb question - what blog provider do you use?
Kindest regards
John l
I don't think you have enough data points to say these numbers are worsening (to a statistical significant degree).