While there is still quite a bit of scatter (and those are 6 month moving average data points), everything that counts, i.e. lymphocytes, platelets and hemoglobin, are slowly moving down. I only wish the platelets and hemoglobin were moving in the opposite direction of the lymphocytes , then I might be a lot happier. Just not sure how that opposite trend bodes.


And I am iron deficient, big time. [Which would account for my low hemoglobin] Test Result Ref Range IRON 30 59-158 mcg/dL TOTAL IRON BINDING CAPACITY 231 250-420 mcg/dL IRON SAT 13 20-50 % My Ferritin levels were good, but that could be because Ferritin is also an "acute phase reactant", that is sometimes increased with acute or chronic disease. Folate and B12 levels were also within the normal range. The only problem now is determining what is causing the iron deficiency, which in the case of men, is [very] rare. My oncologist has given me a Globin Fecal test to perform, and has scheduled me for a consultation with a colorectal surgeon to discuss performing a colonoscopy, which could be problematic because of my large spleen. In the mean time, I've decided to start taking an iron supplement, it's only the quantity that is causing me some consternation. I've been told by a very knowledgeable person that to overcome an iron deficiency, I need to be taking 300 mg o...
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If I had plotted the data from day one you would see the trend for hemoglobin and platelets are down, and continuing down. It's just been a very slow trend down. Lymphocytes originally moved up until about '08, and are now on a downward path, which would be a good thing, if the hemoglobin and platelets were rising. That just isn't the case.
The platelets are not at an alarmingly low rate, but they're not far off. I've just never been an overly optimistic person, so I always expect the worse.
Good luck with your fight - I too have mcl and are in early remission.
Just a dumb question - what blog provider do you use?
Kindest regards
John l
I don't think you have enough data points to say these numbers are worsening (to a statistical significant degree).