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Pomalyst is still working!

Edie has started on her second round of Pomalyst, and the results just keep getting better.

Her Kappa freelight chains are now down to 36 from the 175 about 3 weeks ago. The normal [reference] range is 5 to 19, so there is still a little ways to go, but at least there is progress. Her numbers haven't been this low since after her transplant in October 2008. (It's hard to believe it's been almost 5 years now.)

The only question remaining, as it was was when she first started on the drug, is how long to take it? There doesn't appear to be a good answer for that. Since this drug is so new, there's not a lot of information about how long to stay on it, or even how long is safe to stay on it. Fortunately there doesn't appear to be any significant side effect which can be attributed to the Pomalyst, and which could prevent its further use.

So for now the plan is to finish this cycle, and then see what her numbers are at the end and how she's doing, and then decide.

I'm just thankful I'm not in this position. I doubt I would be as stoic as Edie has been through this entire ordeal.

 

 

 
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