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Day 2 coming to an end

Today didn't seem as bad as yesterday.

The food wasn't quite as good (I was told it never is on the weekends), but I've been blessed for a second day without a roommate (something I doubt will last much longer), and Edie kept me company most of the day, which helped the time go by a little faster.

I was also able to take a shower and shave, which made me feel a little better.

Still, I haven't been told anything about when they're going to operate, and I was just informed by the nurse that I'm not allowed to have the tea kettle, I use to boil water for tea, in my room.

Oh well, I thought that was something that could happen, but no one said anything for a day and a half, so...... Anyways, for now I've hidden it in the bottom drawer of the nightstand, and I'll be more circumspect when I use it tomorrow.

I just wish the Cardiologist, the surgeon or somebody would come by and give me some more information. I'm pretty sure this waiting and the anxiety it's causing isn't doing my heart any good.
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Patt Earhart said…
Marc. I remember waiting. I spent the first nite in the noisy ER. Never b without earplugs. No one could figure out what was wrong with me. A bad reaction to Mozibil? I had all the student neurologists, cardiologists and transplant docs stymied. 2 more nites in main hospital with "gourmet" food ( UCSD Thornton Hospital). I noticed my meds were getting changed up and was told this was my "new normal". Watch for that. Had to call for nurse to help me go potty. Then they sent me home with walker. Again I wish u the best.
5:03 PM
Marc said…
Yeah I know I don't have much room to complain. So many people have it much worse than me.

I don't know what real adversity is, but I suspect I'm going to find out very soon. And I think that's what scares me the most.

I hope you're doing better Patti, and thanks for keeping me in your thoughts.
10:16 PM
Patti Earhart said…
I am MUCH better. I have been working out with a personal trainer for a couple of years. I am stronger than I have ever been and will turn 63 next month. My MCL is indolent so when I relapsed last September I had Rituxan for 8 weeks and am now doing bimonthly maintenance.

Your story of 10 years no treatment is amazing. We have a guy on the MCL spreadsheet (#1) who has had the disease for 22 years and never achieved CR. He went many years with no treatment.

I will think positive thoughts for you on Tuesday.
5:34 AM
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