Skip to main content

Another year come and gone

It's now been just over 9 years since I was diagnosed with MCL, but unlike the fact I no longer have to go into work, this is something I don't think I'll ever get used to.

I've even gotten to the point now where I think I may never need treatment, which wouldn't be a bad thing, but what's scary is, that mindset has become so engrained, I'm at the point where I'm afraid of treatment, and may be hesitant to take it, or even realize I need treatment, when the time comes.

I may even benefit from beginning treatment now, with single agent Rituxan, which would likely make me feel better by reducing the size of my spleen, and my feelings of fatigue, but when I think of all the known [and potentially more severe] unknown side effects, I'm hesitant.

After all, I'm not at the point where I am totally debilitated. I can still function somewhat normal (and not having to make that 80 mile drive to work any more has helped), so I maintain the status quo, hoping [beyond hope] I don't wait too long, and it becomes too late to do anything that will be effective.

One thing I have learned from all this, making decisions at work was a lot easier than the ones you have to make in life.

Labels

Labels:

Comments

Jane said…
My spouse has MCL, diagnosed 1 1/2 years ago, stage 4, in the bone marrow. After chemotherapy protocol (EPOCH-R) at NIH he still remains in remission. It has been a year.

I want him to quit work and enjoy life a bit, but he is not ready. I want to enjoy all the time I can with him!
4:11 AM
Marc said…
From my stand point, and if you can afford it, I'd make him retire. It does take a little getting used to, but just being able to reduce the stress level should be motivation enough.
5:26 AM
Gerry said…
I agree make him retire. Being a breast cancer survivor (11 years) it was the smartest thing I did besides daily exercise...
Who the hell needs the added stress!
11:31 AM
Post a Comment

Popular posts from this blog

History IS repeating itself

I didn't grow up during the rise and fall of Hitler and Nazi Germany, so for me to claim it feels like those are the times we are living in now, must be taken with a grain of salt. But I have seen enough movies, and read enough history to know, if the times we're living in now are not akin to the rise of a Nazism and Facism in Europe in the 1930's and 1940's, then we're not far off. If you can't see the parallels with Nazi Germany, then you must be living in a different country than me. Republicans and other right wing extremists will stop at nothing to subvert the will of the majority, forcing their beliefs, that they are the superior race and have been appointed by God, to impose their will on America, while they blame all our problems on immigrants, blacks and Jews. As I speak, Mitch McConnell, and his minions are raising roadblocks to all legislation designed to help average Americans under the guise of fiscal responsibility. They condone violent and verba...
Post a Comment
Read more

Open letter to all Democrats

Stop the nonsense! Continuing to go after Trump, without any hope of getting a conviction, does nothing more than provide Republicans with an obstructionist dialogue (now that they have come up with the unconstitutional talking point) in addition to giving Trump much needed publicity, when we should be ignoring him. It's the pure definition of insanity, doing the same thing over and over again, and expecting a different result! Instead Democrats need to be laser focused on what is important to all Americans, i.e. healthcare, Social Security and Medicare, infrastructure reform, the Covid-19 vaccine rollout, to name just a few. And when you do talk about Trump, simply steer the conversation as to how the Trump administration botched everything, how Trump is responsible for the deaths of 400,000+ Americans, due to his inaction and the down playing of the pandemic, plus the deaths of 2 Capitol policeman during the insurrection Trump provoked and incited on January 6, 2021. ...
Post a Comment
Read more

Stop the stupidity!

Rural medical center (in Georgia) suspended from vaccination program after inoculating school district staff. Give me a break! Trying to get kids back to school, while protecting teachers, bus drivers and other staff, is exactly what school districts should be doing. If they have vaccines, give them out. We should be giving out vaccines to all who want them, whenever available. Trying to adhere to rigid guidelines will only result in fewer people getting vaccines, resulting in the discarding of precious vaccines, and less protection for everyone. Of course we should be giving first priority to healthcare workers, and any other essential public service employees, such as policeman, fireman, etc. first, but when they're not around to receive shots, or refuse shots, then give them to anyone willing to take them. What I would have objected to is the medical center trying to capitalize on the pandemic to make a profit, from giving vaccines to people far down the list of recipients, but ...
Post a Comment
Read more