Skip to main content

MCL Update

You know it's hard being upbeat all the time, especially considering the state of the economy, and the continual partisan bickering by our elected representatives, further evidenced by today's health care summit [which I turned off after about 10 minutes], who seem to be more concerned with their own well being rather than the well being of the American public.

But that not withstanding, at least the weather has cooperated enough to allow me to get over 500 miles in [on the bike] so far this month, I didn't get called in for jury duty this week, and my latest blood work continues to show stable disease, if not some slight improvement.

My absolute lymphocyte count still continues on its downward trend [ever so slightly], and it looks like my platelets have finally stabilized, with the latest count coming in at 181 thou/cumm. Hemoglobin has also remained stable at 11.8 g/dl. Not great, but all things considering it could be a lot worse.

So as long as I can continue to avoid the nightly news, and confrontations with ill informed individuals [at least IMO], wishing to engage in political discussion, I may yet be able to keep an upbeat attitude.

Plus a good bottle of wine never hurt either. :)
Labels:

Comments

Becky said…
Wow, a positive Marc! Somehow I can't picture it. :-)
12:00 PM
Post a Comment

Popular posts from this blog

Fatigue! Part II - Maybe it is real?

Or it's actually Motivational Deficiency Disorder, MoDeD (pronounced Mo-Dee-Dee) for short. In a report this week by Roy Moynihan who reports for the British Medical Journal Austrailian scientists may have come across the reason for extreme laziness . The condition is claimed to affect up to one in five Australians and is characterised by overwhelming and debilitating apathy. Neuroscientists at the University of Newcastle in Australia say that in severe cases motivational deficiency disorder can be fatal, because the condition reduces the motivation to breathe. Neurologist Leth Argos is part of the team that has identified the disorder, which can be diagnosed using a combination of positron emission tomography and low scores on a motivation rating scale, previously validated in elite athletes. "This disorder is poorly understood," Professor Argos told the BMJ. "It is underdiagnosed and undertreated." Who knew? Maybe I have MoDeD, from my attempts to become a...
Post a Comment
Read more

My concerns reaffirmed today

When I was first diagnosed with MCL, I pretty much read just about everything I could get my hands on, I attended various conferences, and I talked to anyone who would listen. One of the most important lessons I learned, and which I've mentioned numerous times before was No one cares more about you than you. But in addition to that, I learned to fear the drug Doxorubicin , AKA Adriamycin, Doxil, Hydroxydoxorubicin, or more affectionately the Red Devil. Besides being a deadly chemical, as is the case with most chemotherapy drugs, it is one of the few chemotherapy drugs known to cause permanent heart damage. I even heard Dr. Sandra Horning , a noted Stanford lymphoma specialist, state at the first lymphoma conference I attended in LA, there was no evidence Doxorubicin provided any added benefit to chemotherapy protocols. This was music to my ears, since Doxorubicin is very common in most lymphoma treatment protocols. And even though Dr. Horning has since changed her tune [which my sk...
Post a Comment
Read more

You can't make this shit up. Really!

We had been planning to see a taping of Undateable Live for a few weeks now, and we actually made it there tonight, but on the way something awful happened. A terrorist attack in Paris. Now it might seem heartless of me to be thinking about my misfortune, having to wait over 2 hours for our driver ( the show was cancelled) ), to pick us up, when so many others are suffering an unimaginable fate, but it is what it is. If nothing else, this few hours has provided a lot of time to think [blog], what might have been, if it weren't for the likes of Republicans, and the spawning of the two individuals I blame most for the state of the world today, George W Bush, and Dick Cheney. Those two, in only 8 short years, managed to do more to destabilize the world, creating the chaos there is today, than anyone could have ever imagined. (What Saddam Hussein must be thinking now.) If anyone deserves blame for the carnage in Paris today, it is George W. Bush and Dick Cheney, and they should b...
Post a Comment
Read more