Skip to main content

Some more updates

Well, it's 38.3°F this morning, and I doubt I'll be going out for a ride at my normal time, so I thought I'd take the extra time to do a little rambling.

First off, as most of my regular visitors should have already noted, I've finally decided on a new theme. There are still some more improvements I need to make, as time goes on, but for now I am happy with it.

Yesterday, Edie got a letter in the mail, formally denying her transplant. That wasn't unexpected, and may actually have been welcome, if you remember from my last post. She also had an appointment with her oncologist yesterday, where they discussed how to proceed.

Edie is in at least a partial remission, so they both decided it's best to stop all treatments for now, and see what transpires over the next several weeks/months and hopefully years. This should give the neuropathy more time to improve, and the heart damage to reverse itself. There is strong evidence for both this will occur.

So here we are in what is called the wait and watch (aka worry) mode. We're still planning on going to New Zealand the last two weeks in March, but I'm trying to convince Edie we should move the trip up a few weeks. I sure would like to get away from this brutally cold winter, which seems to have no end in sight, for a couple of weeks. After all, it is summer in New Zealand.

Edie's nueropathy is still presenting some problems for her, so that is my one concern. I would like to see her feeling better before we take the trip, but who knows, the warmer weather in New Zealand may actually help.

I know it will help me!

Comments

Becky said…
I like it! But it is your blog so do what you must.

I don't understand how an HMO denial is a good thing, though, unless they denied her because of her remission.

You should be proud of me because I organized a hike today. We're going to hike in the Santa Monica National Park and I hope to get my knitsters sisters to do it every weekend.

We shall see.
Marc said…
They denied her because of the heart problem. We already knew they were going to, and the letter was just a formality.

And if you read my previous post, you'll know why we think it was a good thing.

Remember, it's all about fate.

And just to prove I know what I'm talking about, there was a crash early on during the club ride this morning. Fortunately I decided not to go the normal time, and met the group after the crash.

If I had gone earlier, I might have been in it, but that was just not to be.
Alan said…
Yep, you did good this time. I like it.

Popular posts from this blog

Fatigue! Part II - Maybe it is real?

Or it's actually Motivational Deficiency Disorder, MoDeD (pronounced Mo-Dee-Dee) for short. In a report this week by Roy Moynihan who reports for the British Medical Journal Austrailian scientists may have come across the reason for extreme laziness . The condition is claimed to affect up to one in five Australians and is characterised by overwhelming and debilitating apathy. Neuroscientists at the University of Newcastle in Australia say that in severe cases motivational deficiency disorder can be fatal, because the condition reduces the motivation to breathe. Neurologist Leth Argos is part of the team that has identified the disorder, which can be diagnosed using a combination of positron emission tomography and low scores on a motivation rating scale, previously validated in elite athletes. "This disorder is poorly understood," Professor Argos told the BMJ. "It is underdiagnosed and undertreated." Who knew? Maybe I have MoDeD, from my attempts to become a...

History IS repeating itself

I didn't grow up during the rise and fall of Hitler and Nazi Germany, so for me to claim it feels like those are the times we are living in now, must be taken with a grain of salt. But I have seen enough movies, and read enough history to know, if the times we're living in now are not akin to the rise of a Nazism and Facism in Europe in the 1930's and 1940's, then we're not far off. If you can't see the parallels with Nazi Germany, then you must be living in a different country than me. Republicans and other right wing extremists will stop at nothing to subvert the will of the majority, forcing their beliefs, that they are the superior race and have been appointed by God, to impose their will on America, while they blame all our problems on immigrants, blacks and Jews. As I speak, Mitch McConnell, and his minions are raising roadblocks to all legislation designed to help average Americans under the guise of fiscal responsibility. They condone violent and verba...

My concerns reaffirmed today

When I was first diagnosed with MCL, I pretty much read just about everything I could get my hands on, I attended various conferences, and I talked to anyone who would listen. One of the most important lessons I learned, and which I've mentioned numerous times before was No one cares more about you than you. But in addition to that, I learned to fear the drug Doxorubicin , AKA Adriamycin, Doxil, Hydroxydoxorubicin, or more affectionately the Red Devil. Besides being a deadly chemical, as is the case with most chemotherapy drugs, it is one of the few chemotherapy drugs known to cause permanent heart damage. I even heard Dr. Sandra Horning , a noted Stanford lymphoma specialist, state at the first lymphoma conference I attended in LA, there was no evidence Doxorubicin provided any added benefit to chemotherapy protocols. This was music to my ears, since Doxorubicin is very common in most lymphoma treatment protocols. And even though Dr. Horning has since changed her tune [which my sk...