Met with the transplant specialist yesterday, and it was far different than what I experienced during my visit 5 years ago.
The doctor didn't go over any of the complications, side effects and hazards of a transplant, but rather just discussed what Myeloma is in general, and then discussed the transplant procedure, and some of the complications resulting from the fact Edie's kidneys weren't functioning properly.
He did think we should restart the Velcade, but (there's always a but) wanted to wait until after the meeting with the entire transplant team, on Wednesday, to discuss Edie's case, before telling the "fill in" oncologist to proceed.
Needless to say, I was not happy with that response, but..............
I was willing to wait until I saw the results of this mornings creatinine test, and as long as it was continuing to go down, I would wait. If it didn't show any improvement, then I was going to insist (with Edie's blessing) the oncologist restart the Velcade immediately, and if she refused, we would fire her, and get another oncologist.
Of course, as you might expect the way things have been going, whoever's responsibility it was, forgot to draw blood for the creatinine test this morning. Instead all they drew was blood for the bleeding time test, which wasn't even necessary since Edie wasn't having plasmapheresis today.
Jeez! Can you believe that? Now I have to wait about another hour to find out the results.
The doctor didn't go over any of the complications, side effects and hazards of a transplant, but rather just discussed what Myeloma is in general, and then discussed the transplant procedure, and some of the complications resulting from the fact Edie's kidneys weren't functioning properly.
He did think we should restart the Velcade, but (there's always a but) wanted to wait until after the meeting with the entire transplant team, on Wednesday, to discuss Edie's case, before telling the "fill in" oncologist to proceed.
Needless to say, I was not happy with that response, but..............
I was willing to wait until I saw the results of this mornings creatinine test, and as long as it was continuing to go down, I would wait. If it didn't show any improvement, then I was going to insist (with Edie's blessing) the oncologist restart the Velcade immediately, and if she refused, we would fire her, and get another oncologist.
Of course, as you might expect the way things have been going, whoever's responsibility it was, forgot to draw blood for the creatinine test this morning. Instead all they drew was blood for the bleeding time test, which wasn't even necessary since Edie wasn't having plasmapheresis today.
Jeez! Can you believe that? Now I have to wait about another hour to find out the results.
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