Skip to main content

Even winning my golf match today didn't help

Yes, I won my first round of match play in the Eldorado Men's Club golf Flights Championship, but not even that could improve my mood after Edie called and said her urine protein jumped from 399 mg/24 hrs in November of '06, to 2288 mg/24 hrs in July '07.

That isn't good, and means the Revlimid and Dex isn't working. And I had such high hopes. :(

Now we're faced with a decision - Velcade and Doxil (AKA Adriamycin), Doxil alone or a transplant, none of which are good choices, at least in my opinion.

Anyone who has ever read this blog, or posts of mine else where, know that I don't like the idea of a transplant, except as a last resort, and I don't like Adriamycin much more, but those are the choices.

So right now, Edie's oncologist is going to contact Dr. Durie, a myeloma expert at Cedar's Sinai, to get his input, plus she is going to have a MUGA scan (to test heart function in anticipation of using the Doxil), and then she has another appointment with her oncologist next Monday to discuss the options.

This getting old *&#@ isn't what it's cracked up to be. It's one thing dealing with your own illness, it's a whole other experience dealing with the disease of a loved one. That's a lot more difficult.

Needless to say, I'm not a happy camper. :(
Labels:

Comments

lmarsico said…
I am catching up on your posts - but just read about Edie. I wish I could say something that would make you feel better - but one thing is for sure - she has you! And you are an inspiring and amazing person - you will help her get thru this.
10:14 AM
Marc said…
Well, I don't know how inspiring and amazing I am, but thank you for thinking so.
11:02 AM
Post a Comment

Popular posts from this blog

Vaccine Mandates, what are they good for?

Not much, that's for sure! Simply showing evidence of receiving a Covid-19 vaccine (whether fake or not), does not mean you are protected from getting Covid-19, nor spreading it, if infected. We are all different, and too many of us, i.e. people who are immunocompromised/ immunosupressed, the elderly, or others for various reasons, do not [cannot] mount an immune response as good as younger and healthier individuals. What is evidence of immunity is a quantitative antibody test showing you have developed antibodies, and to what degree, either from natural immunity or the vaccine.  That is what we should be testing for. That is what is important. But for too long, many, i.e. the FDA, doctors, and other health experts discouraged people (and still are) from getting antibody tests, because there was little knowledge about what level of antibodies are needed to impart immunity to the virus. That of course is true, to some extent, but how can we ever find out [learn] the answer to that q
Post a Comment
Read more

History IS repeating itself

I didn't grow up during the rise and fall of Hitler and Nazi Germany, so for me to claim it feels like those are the times we are living in now, must be taken with a grain of salt. But I have seen enough movies, and read enough history to know, if the times we're living in now are not akin to the rise of a Nazism and Facism in Europe in the 1930's and 1940's, then we're not far off. If you can't see the parallels with Nazi Germany, then you must be living in a different country than me. Republicans and other right wing extremists will stop at nothing to subvert the will of the majority, forcing their beliefs, that they are the superior race and have been appointed by God, to impose their will on America, while they blame all our problems on immigrants, blacks and Jews. As I speak, Mitch McConnell, and his minions are raising roadblocks to all legislation designed to help average Americans under the guise of fiscal responsibility. They condone violent and verba
Post a Comment
Read more

Open letter to all Democrats

Stop the nonsense! Continuing to go after Trump, without any hope of getting a conviction, does nothing more than provide Republicans with an obstructionist dialogue (now that they have come up with the unconstitutional talking point) in addition to giving Trump much needed publicity, when we should be ignoring him. It's the pure definition of insanity, doing the same thing over and over again, and expecting a different result! Instead Democrats need to be laser focused on what is important to all Americans, i.e. healthcare, Social Security and Medicare, infrastructure reform, the Covid-19 vaccine rollout, to name just a few. And when you do talk about Trump, simply steer the conversation as to how the Trump administration botched everything, how Trump is responsible for the deaths of 400,000+ Americans, due to his inaction and the down playing of the pandemic, plus the deaths of 2 Capitol policeman during the insurrection Trump provoked and incited on January 6, 2021.
Post a Comment
Read more