Skip to main content

Treatment time is here!

A week or two ago, I posted about Edie possibly needing treatment very soon. Well it seems that time has come.

Yesterday, Edie had her second opinion consultation with Dr. Brian Durie at Cedars Sinai Hospital, and he concurred with the conclusion of her current oncologist at Kaiser, Dr. Simmons. (One good piece of news we have found is that Dr. Simmons is the oncologist to be seeing at Kaiser for myeloma.)

We have decided to go with the Thalidomide plus Dexamethasome protocol, which I believe is delivered in pill form. That doesn't make it any less severe a treatment, but it does make it easier to take. It also leave lots of doors open for future treatments.

All that remains now is securing an appointment, with Dr. Simmons, so that she can begin treatment. Oh yeah, and making sure we get the most out of the next few weeks in the way of culinary pleasures. Among other things, Dexamethasome wreaks havoc on the taste buds. Not sure what Thalidomide will do, but we know it can't be good.
Labels:

Comments

Becky said…
So, how long does the treatment last? Give her my best and be especially patient and buy her lots of chocolate.
12:11 AM
Marc said…
Don't know how long it will last. Until she gets a remission plus a few extra cycles for good measure.

Hopefully not too long!
10:27 AM
Post a Comment

Popular posts from this blog

Fatigue! Part II - Maybe it is real?

Or it's actually Motivational Deficiency Disorder, MoDeD (pronounced Mo-Dee-Dee) for short. In a report this week by Roy Moynihan who reports for the British Medical Journal Austrailian scientists may have come across the reason for extreme laziness . The condition is claimed to affect up to one in five Australians and is characterised by overwhelming and debilitating apathy. Neuroscientists at the University of Newcastle in Australia say that in severe cases motivational deficiency disorder can be fatal, because the condition reduces the motivation to breathe. Neurologist Leth Argos is part of the team that has identified the disorder, which can be diagnosed using a combination of positron emission tomography and low scores on a motivation rating scale, previously validated in elite athletes. "This disorder is poorly understood," Professor Argos told the BMJ. "It is underdiagnosed and undertreated." Who knew? Maybe I have MoDeD, from my attempts to become a...
Post a Comment
Read more

My concerns reaffirmed today

When I was first diagnosed with MCL, I pretty much read just about everything I could get my hands on, I attended various conferences, and I talked to anyone who would listen. One of the most important lessons I learned, and which I've mentioned numerous times before was No one cares more about you than you. But in addition to that, I learned to fear the drug Doxorubicin , AKA Adriamycin, Doxil, Hydroxydoxorubicin, or more affectionately the Red Devil. Besides being a deadly chemical, as is the case with most chemotherapy drugs, it is one of the few chemotherapy drugs known to cause permanent heart damage. I even heard Dr. Sandra Horning , a noted Stanford lymphoma specialist, state at the first lymphoma conference I attended in LA, there was no evidence Doxorubicin provided any added benefit to chemotherapy protocols. This was music to my ears, since Doxorubicin is very common in most lymphoma treatment protocols. And even though Dr. Horning has since changed her tune [which my sk...
Post a Comment
Read more

Tacitly condoning racism?

I learned something very discouraging in my current events class yesterday, there are a lot more racists and bigots out there then you may think. They may not admit it, or they'll claim otherwise, but when someone says they place the blame for what happened in Charlottesville on both sides, or better yet, they don't know where the blame lays, then they are condoning the action of the white supremacists groups, and in my book that is a racist/bigot. The truth is, there should be no doubt where blame for Charlottesville lays. It lays with the white supremacists, neo-Nazi's, KKK, etc, plain and simple! The hatred, bigotry, and misogyny displayed and espoused by these groups, coupled with the tacit approval of President Trump needs to be confronted at all cost, and history tells us so. If only the Jews, in pre-WWII Germany, had confronted the Nazi's in the same manner, Hitler might never have risen to power, and we would not be looking at the prospect of a  third anti...
Post a Comment
Read more