Skip to main content

Last Day!

Finally, the last day of radiation treatment for my wife's plasmacytoma is today, and it's none too soon. It's only been 3-1/2 weeks, but it seems like an eternity. While the treatments themselves have not been painful, or otherwise difficult, the cumulative effects of the treatments are starting to take their toll. Edie is having difficulty swallowing, all wine tastes terrible, most foods the same, and she seems to be sleeping (or napping) more often.

Hopefully with the end of treatments these effects will wear off, and life can return to some sense of normalcy, as difficult as that may be. But, it doesn't completely end here. There are still more tests and potential treatments on the horizon.

Today, just before her last radiation treatment, there is the CT Myelogram, intended to help the othopedic oncologist better determine on how to proceed with the fracture of the T2 vertebrae. Hopefully it will heal on its own, as the orthopedic oncologist did not hold out much hope for any intervention type treatment, but we won't know for sure until after the test. (This is an approximate 4 hour procedure, after which you are not allowed to drive, due to the effects of the dye used. Fortunately there is golf course close by, where I can wait out the procedure.)

Then next week, there is a final visit with the radiation oncologist, a visit to the orthopedic oncologist to discuss the results of the CT Myelogram, and another visit with her regular oncologist, to discuss how she thinks we should proceed, and to run any additional tests which might be necessary.

Out of all this ordeal, there was one note thing I thought worthy of mentioning. For those of us who have been through this sort of experience it is quite apparent, but for those who have not been through such an ordeal, or have a relative or close friend experiencing a similar situation, it may not be so obvious.

Life threatening experiences, such as these seem to transcend all socioeconomic, racial, ethnic and religious barriers. When you're sick a certain camaraderie (a bond) developes among those in similar situations. I guess it is a way of coping with a desperate situation. Regardless of your status in life, you have something in common with the other person.

This bond can manifest itself in many ways.

It the case of my wife, it has manifested itself in a way I thought a unique. Over the years a tradition has developed among those who ride the shuttle from the Kaiser Bellflower facility to the Sunset facility (where the treatments are administered) to give a gift, on your last day, to the remaining patients on the bus. So far Edie has received gifts on at least 4 other occasions, and now it is her turn to reciprocate. The gifts are nothing of great expense or consequence, typically being candy or other similar goodies, but I thought the gesture was particularly telling.

Last night Edie spent about an hour packing all the gift bags.

Comments

John Wagner said…
Hooray for the last day of radiation. A last day of any of these treatments is a good day. Will be watching for your post of good results from all of this.
Marcia Forkos said…
Can't wait to see you next week (Memorial Day weekend) and catch up!

Popular posts from this blog

History IS repeating itself

I didn't grow up during the rise and fall of Hitler and Nazi Germany, so for me to claim it feels like those are the times we are living in now, must be taken with a grain of salt. But I have seen enough movies, and read enough history to know, if the times we're living in now are not akin to the rise of a Nazism and Facism in Europe in the 1930's and 1940's, then we're not far off. If you can't see the parallels with Nazi Germany, then you must be living in a different country than me. Republicans and other right wing extremists will stop at nothing to subvert the will of the majority, forcing their beliefs, that they are the superior race and have been appointed by God, to impose their will on America, while they blame all our problems on immigrants, blacks and Jews. As I speak, Mitch McConnell, and his minions are raising roadblocks to all legislation designed to help average Americans under the guise of fiscal responsibility. They condone violent and verba...

My concerns reaffirmed today

When I was first diagnosed with MCL, I pretty much read just about everything I could get my hands on, I attended various conferences, and I talked to anyone who would listen. One of the most important lessons I learned, and which I've mentioned numerous times before was No one cares more about you than you. But in addition to that, I learned to fear the drug Doxorubicin , AKA Adriamycin, Doxil, Hydroxydoxorubicin, or more affectionately the Red Devil. Besides being a deadly chemical, as is the case with most chemotherapy drugs, it is one of the few chemotherapy drugs known to cause permanent heart damage. I even heard Dr. Sandra Horning , a noted Stanford lymphoma specialist, state at the first lymphoma conference I attended in LA, there was no evidence Doxorubicin provided any added benefit to chemotherapy protocols. This was music to my ears, since Doxorubicin is very common in most lymphoma treatment protocols. And even though Dr. Horning has since changed her tune [which my sk...

Pet Peeves

Since it's raining today, I didn't have much to do [I couldn't ride my bike], so I thought I'd complain about some of the little things that bug me. I know I'm not supposed to sweat the little things, which I don't [for the most part], but these are so minuscule, I figure they don't really count. One of my biggest complaints are walnuts, or any kind of nuts, in chocolate chip cookies. Nuts have no business in chocolate chip cookies. Chocolate chip cookies are sweet. They're a dessert, and nuts provide an unwanted texture, and flavor that takes away from that. Nuts don't belong in chocolate chip cookies. And come to think about it, nuts don't belong in brownies either, but I don't usually eat brownies (I don't particularly like them), so I don't really care. Still they don't belong. They're OK in Snickers, but that's about it. Another complaint is with people who buy [or rent] a convertible, and then drive around in it with...