Skip to main content

A Visit to the Radiation Oncologist

Well that was a fun experience, NOT!

Starting with the trip to Kaiser Sunset which is on Sunset Blvd in LA. That's about 30 miles into heavy traffic. If you're from LA, you know how tough that drive can be, and if you're not from LA, just be happy you don't have to find out. Fortunately Kaiser runs a shuttle from various satellite locations to the Kaiser Sunset facility, so at least my wife (Edie) won't have to do that commute herself.

As it turns out, she is scheduled for daily treatments, Monday thru Friday, for the next 5 weeks. This came as quite a shock, as Edie was expecting 2 to 3 treatments. I'm not sure what I expected, but it sure wasn't anywhere close to 25 treatments.

As expected, the facility was a very nice and clean facility, and the doctor was very nice and very young also. He tried to paint a not so dire picture of the treatment, but I knew better. And rather than bore you all with the particulars, I'll just tell you that there are side effects (mostly fatigue), and long term effects, i.e. susceptability to secondary cancers some time in the future. There were also some hazards, which he mentioned, but I prefer not to think about them.

In the mean time, Edie goes for a mapping and graphing (I think that is what they called it) on Monday, but we're still waiting for the results of the skeletel exam, the BMB and the urinalysis to ensure that the disease is not showing up anywhere else, before proceeding with the treatment.

Fortunately everybody where I work and where Edie works have been very supportive. I can't imagine how it would be for us, or for others if they were not so supportive.

Comments

Popular posts from this blog

My concerns reaffirmed today

When I was first diagnosed with MCL, I pretty much read just about everything I could get my hands on, I attended various conferences, and I talked to anyone who would listen. One of the most important lessons I learned, and which I've mentioned numerous times before was No one cares more about you than you. But in addition to that, I learned to fear the drug Doxorubicin , AKA Adriamycin, Doxil, Hydroxydoxorubicin, or more affectionately the Red Devil. Besides being a deadly chemical, as is the case with most chemotherapy drugs, it is one of the few chemotherapy drugs known to cause permanent heart damage. I even heard Dr. Sandra Horning , a noted Stanford lymphoma specialist, state at the first lymphoma conference I attended in LA, there was no evidence Doxorubicin provided any added benefit to chemotherapy protocols. This was music to my ears, since Doxorubicin is very common in most lymphoma treatment protocols. And even though Dr. Horning has since changed her tune [which my sk...

Bowling: A metaphor on life [sorta]

Over the past 15+ years the game of bowling has changed dramatically. Not only has the equipment changed, making it easier for bowlers of all ages and physical conditions to participate, and score well, but there have even been major advances to how the lanes are prepared for the start of bowling. No longer is it just heavy oil, light oil, long oil, short oil, or no oil, with the latest equipment, the amount of oil can be varied from front to back and side to side, producing a myriad of patterns designed to make the game more interesting, more challenging and as you might surmise, more frustrating. No longer does the "one ball fits all" approach work any more either. In order to navigate all the differing possible lane conditions, you need to have a varied selection of bowling balls. Most pros will tell you the average bowler needs 3 balls, plus a ball for spares, but to be an above average bowler you'll need at least 6 balls, with many possessing more than that. But just...

Fatigue! Part II - Maybe it is real?

Or it's actually Motivational Deficiency Disorder, MoDeD (pronounced Mo-Dee-Dee) for short. In a report this week by Roy Moynihan who reports for the British Medical Journal Austrailian scientists may have come across the reason for extreme laziness . The condition is claimed to affect up to one in five Australians and is characterised by overwhelming and debilitating apathy. Neuroscientists at the University of Newcastle in Australia say that in severe cases motivational deficiency disorder can be fatal, because the condition reduces the motivation to breathe. Neurologist Leth Argos is part of the team that has identified the disorder, which can be diagnosed using a combination of positron emission tomography and low scores on a motivation rating scale, previously validated in elite athletes. "This disorder is poorly understood," Professor Argos told the BMJ. "It is underdiagnosed and undertreated." Who knew? Maybe I have MoDeD, from my attempts to become a...