Skip to main content

New Oncologist

Well, I met my new oncologist yesterday. He was very nice, but it was still slightly uncomfortable, as it was a new relationship.

He examined me, checking for lymphnodes, and overall health, and then we talked about possible treatments down the road.

He wasn't up on lymphoma's as much as I would have hoped, but he was familiar with the work done at MD Anderson with HyperCVAD and autologous transplants, which I expressed my reservations about, and he was up on the work being done with Velcade.

I also expressed my reservations about the use of Doxorubicin in any chemo protocol we might agree upon, which did surprise him slightly, but I think he understood. I was trying to plant the seeds for initial treatment with rituxan or possibly a splenectomy. I mentioned the results of the use of high dose rituxan, i.e. 750mg/m2, but he was not familiar with that study. I neglected to get his opinion on splenectomy's, which I will discuss with him in about 6 weeks. I have papers on both.

Other than that, I think it went well. As I said before he was very pleasant, young and seemed willing to learn more. The biggest obstacle is in dealing with the new nurse, who was also very nice and young, but I was really used to Jackie, my old oncologist's nurse. She was the most experienced, and always seemed to be in control of the department. She would always get me a flu shot whenever I asked, would call me back with the results of my in between office visit blood work, and always seemed genuinely concerned with my well being. That will be the hardest relationship to get over.

Comments

Popular posts from this blog

My concerns reaffirmed today

When I was first diagnosed with MCL, I pretty much read just about everything I could get my hands on, I attended various conferences, and I talked to anyone who would listen. One of the most important lessons I learned, and which I've mentioned numerous times before was No one cares more about you than you. But in addition to that, I learned to fear the drug Doxorubicin , AKA Adriamycin, Doxil, Hydroxydoxorubicin, or more affectionately the Red Devil. Besides being a deadly chemical, as is the case with most chemotherapy drugs, it is one of the few chemotherapy drugs known to cause permanent heart damage. I even heard Dr. Sandra Horning , a noted Stanford lymphoma specialist, state at the first lymphoma conference I attended in LA, there was no evidence Doxorubicin provided any added benefit to chemotherapy protocols. This was music to my ears, since Doxorubicin is very common in most lymphoma treatment protocols. And even though Dr. Horning has since changed her tune [which my sk...

Bowling: A metaphor on life [sorta]

Over the past 15+ years the game of bowling has changed dramatically. Not only has the equipment changed, making it easier for bowlers of all ages and physical conditions to participate, and score well, but there have even been major advances to how the lanes are prepared for the start of bowling. No longer is it just heavy oil, light oil, long oil, short oil, or no oil, with the latest equipment, the amount of oil can be varied from front to back and side to side, producing a myriad of patterns designed to make the game more interesting, more challenging and as you might surmise, more frustrating. No longer does the "one ball fits all" approach work any more either. In order to navigate all the differing possible lane conditions, you need to have a varied selection of bowling balls. Most pros will tell you the average bowler needs 3 balls, plus a ball for spares, but to be an above average bowler you'll need at least 6 balls, with many possessing more than that. But just...

Fatigue! Part II - Maybe it is real?

Or it's actually Motivational Deficiency Disorder, MoDeD (pronounced Mo-Dee-Dee) for short. In a report this week by Roy Moynihan who reports for the British Medical Journal Austrailian scientists may have come across the reason for extreme laziness . The condition is claimed to affect up to one in five Australians and is characterised by overwhelming and debilitating apathy. Neuroscientists at the University of Newcastle in Australia say that in severe cases motivational deficiency disorder can be fatal, because the condition reduces the motivation to breathe. Neurologist Leth Argos is part of the team that has identified the disorder, which can be diagnosed using a combination of positron emission tomography and low scores on a motivation rating scale, previously validated in elite athletes. "This disorder is poorly understood," Professor Argos told the BMJ. "It is underdiagnosed and undertreated." Who knew? Maybe I have MoDeD, from my attempts to become a...